Inova Fairfax Liver Biopsy Results – Good News!

We received a call from Mr. Lam, the liver PA, yesterday about the results of Anya’s liver biopsy.  We already knew that the “pressures” were normal, but we didn’t know the results of the liver biopsy yet.  Mr. Lam gave us the good news that Anya does not have cirrhosis of the liver.  PHEW!

We kinda, already knew that she didn’t have cirrhosis based on what the doctors told us a few weeks ago, but yesterday, it was confirmed through another biopsy.  What a relief.  Huge relief.

Three months ago, the doctors at Duke told us that Anya probably has cirrhosis, and would probably need a double lung retransplant + a liver transplant.  Today, that prognosis has totally changed.  We’re still waiting for the final word from Duke, but we’re pretty certain that the liver transplant is no longer necessary.  Anya has to call Dr. Berg, the liver medical director at Duke, some time next week to confirm, but we’re hopeful that this paves the way for us to relocate down to Duke to get Anya ready for a double lung retransplant.

The double lung retransplant is already going to be adventure, but at least it’s an adventure that a lot of transplantees have already experienced.

Anyways, the waiting game continues.  These days, the only thing that we’re certain of is that we’ll have to wait for someone or some thing…

Happy 6th Transplant Anniversary to Anya!

Six years ago today, Anya received her new lungs from an anonymous donor.  After 3 years on the waiting list (on and off), with a breathing capacity of around 12% (FEV1). she finally got “the call” around noon on June 24, 2008.  Roughly 35 days later, she was out of the hospital, and back to 100% breathing capacity.  Six months later, Anya and I met for the first time.  What a ride it’s been since then!

I don’t talk about organ donation often, but after meeting Anya, I’ve read and learned a lot about it.  Simply put:

how many lives can one person save with organ donation

In my opinion, organ donation is single handedly the easiest thing that one person can do to help another.  Here’s a link, just in case you’re interested:

http://donatelife.net/register-now/

Click on your state, fill out the form, and boom, you’re registered.

Without organ donation, Anya would not be here today, along with many, many others in need of organs every single day.  That’s the reality.

how many people are on the waiting list

With Anya on the cusp of another transplant, if there’s only one thing that we could choose for you to help, it would be to register as an organ donor.

Liver Biopsy – Take 2

The liver biopsy at Fair Oaks Hospital on Monday was not performed because one of the equipment people failed to deliver the necessary equipment on time.  What a botch!  The doctor was pissed, as were we.

Anya had an IV in her; they wheeled her into the procedure room, and about 45 minutes later, they came and got me in the waiting room.  Anya was fully dressed and pissed.

How could an entire operation involving so many people be put to a halt due to one person’s failure to do their job?  Crazy, but I guess it happens.  I really hope this person is reprimanded because something like this is inexcusable.

Luckily, we were able to reschedule the liver biopsy for today.  We left the house around 11:30am.  All of the paper work, the prep work….the IV, etc. took about 2 hours, so the actual procedure didn’t start until around 2pm.  One of the physician’s assistants (PA) came and got me around 3:25pm.  Anya was a little woozy because she told the docs to give her a little extra “sleepy time” medicine, but it didn’t take her too long to wake up from the anesthesia.

After the procedure, the doctor came in and told us about some of the results that he found.  He said that Anya’s “pressures” were around 7-8.  I asked him what that meant, and he explained to me that normal “pressures” were around 5 and full blown portal hypertension was 12+, sometimes as high as 20.  He said that based on those numbers Anya DOES NOT HAVE PORTAL HYPERTENSION.  Good news for sure.

They had to keep her under observation for 3 hours, so we didn’t actually get home until around 8:15pm.  Pretty long day.  Especially for Anya, who wasn’t allowed to eat or drink anything until after the procedure was done.

Now, we’re just waiting on the results of the liver biopsy, which he said would take around 2-7 days.  Hopefully, they will deliver some more good news in the upcoming week.

anya - liver biopsy

Anya in her liver biopsy attire