We weren’t expecting much today, but they did bring Anya down for an ultrasound around 8am. She wasn’t down there for very long. The ultrasound was for the abdomen, so I’m thinking that the Liver guys ordered it.
Tomorrow is already gearing up to be a pretty long day. Anya is scheduled to do a left right heart catheterization at 11am. The procedure is performed under mild sedation. The test is used to determine if there is any coronary artery disease. It can last from one hour to several hours.
Also on the agenda is a T-Spot.TB test which is a blood test for Tuberculosis. There’s a very slim chance that Anya has TB, but I think they just want to make sure they cross their T’s and dot their I’s. The good news is that the test should just be a simple blood draw.
I think the modified barium swallow and the spiro imaging have been pushed back to Wednesday. All of these other tests will depend on how Anya is feeling after her heart cath procedure because she will be a little bit drowsy.
A new pulmonary doctor came in and gave us a little bit of a scare. Last week’s doctor said that the M. Abscessus shouldn’t be an issue, but the new guy was a little more concerned. He even told us that they recently lost a transplanted patient just who had an active M. Abscessus lung infection. I don’t know the exact details, but it was definitely not something that we wanted to hear.
Another scare was when the nurse rolled a scale into our room. Anya weighed 77.8 lbs on the scale. That puts her BMI at 15.2. Not good. We’re hoping that the scale was a little bit off because the one on her bed said that she was 85 lbs. The bed scale read 82 lbs. when Anya was admitted. Regardless of the pound or two difference, we’re going to work on getting some more nutrition in her. Hopefully with the help of this J-tube.
On a better note, we had a few visitors today. Becky came back with her son, Luke, and hung out with us for a few hours. They brought us me some Shipley’s donuts. Then, Anya’s college friend, PJ and her friend came by in the evening and brought us some dinner. It’s refreshing to get our minds off of everything going on, even if it’s only for a few hours. I love it when people do things out of the kindness of their heart expecting nothing in return. And this really goes out to everyone on Stay Strong Anya, Anya’s family, my family, etc. Thank you all.
Since today was an off day, I was able to go out for a little jog, which turned out to be a little longer than I anticipated because I got a little lost. Anyways, I was able to get some pictures of beautiful Houston.