The good news is that we’re getting out of here! The bad news is that it’s not going to happen until the end of the month.
It’s been a long journey, but I think we’re both ready to go HOME.
Anya had her 6-month checkup yesterday. They did a full battery of tests, including blood work, VQ scan, CT Scan, EKG, Echo, PFTs, and a bronchoscopy with biopsy and cultures on Monday. Yeah, say that 10 times fast.
Things are going pretty good. Anya’s lung function (PFTs) is currently at 64%. It got as high as 72%, but she’s still having a little narrowing of her airways, which is why we have to stay here for another few weeks. They want to do one more balloon dilation (no stent), of her airways before they release us to our transplant team back in Virginia.
At the end of our clinic yesterday, the head of the pulmonary team, Dr. Kaleekal, gave us green light to go home by the end of the month. Woohoo! He also told us that Anya was the last retransplant at Houston Methodist (transferred from another center) for at least “a year or so”, mainly because they are so understaffed right now. I couldn’t help but think how timing played such a huge part in this.
So, how’s Anya feeling? Well, we walked a 5k about a month ago:
Celebrated her 40th birthday on April 27th!!!
Hit some golf balls at Top Golf – Katy:
Went to a Dynamo game:
Flew to southern Virginia for a few days:
Visited our old friends at Kindred Hospital:
Truth is, Anya is really enjoying just being able to breathe again. To our friends and family back at home, we’ll be back in a few weeks. And to our family here in Houston (Luke, Becky, Stephen and Lauren), we’re not leaving yet! And we’ll definitely be back in Houston in 6 months for our 1 year checkup.